A younger and an older woman, who holds medicine in her hands, are smiling.
The team of PCST supports critical ill people like Belita, on their last journey and makes possible, so that they can spend it with dignity and without pain. It's not only about care, but also about psychological support. Photo: action medeor/Markus Bremers

How a project in Malawi gives hope to critical ill people

To get the diagnosis, that the doctors can not do anything for you anymore, can knock the ground out from under many patients. The team of our partner Palliative Care Support Trust (PCST) in Malawi helps critical ill people to die in dignity and without pain.

"They felt forgotten and alone; now they become some hope, to die with dignity," explains Precious Kamange the project in Malawi, which is implemented together with action medeor. He is the director of the Palliative Care Support Trust and has already witnessed many moving fates that seemed hopeless to those affected and their families.

New hope for "forgotten patients"

The non-profit foundation supports people with lifeshortening diseases like HIV, cancer, etc. Those people can not move without help and have no strength anymore, to go to the hospital. The team of PCST visits the patients at home - in some cases in remote areas, which can not be reached by bicycle, let alone by car. Staff from the non-profit foundation set off on foot, some travelling several kilometres with backpacks packed to the brim, to provide patients in the final stages of their lives with essential medicines and food.

They also train relatives and carers in appropriate pain management and how to care for patients, so that their condition does not deteriorate unnecessarily during the final stages of their lives.

Backpack-pilot-project together with PCST 

Together with action medeor, PCST has started a backpack-pilot-project. For that, the team in Malawi got backpacks, filled with medicines and medical equipment. The contents are not chosed by chance: Every little dose is approved in advance by a qualified healthcare professional, clearly labelled for individual patients and recorded in registers. This means that people suffering from incurable illnesses can receive palliative care at home, even in remote villages in Malawi, so that they do not have to suffer from pain during the final stages of their lives.

Live-changing project work that extends beyond death

The team of PCST meanwhile reaches 300 patients in the disctricts in Malawi with our help. Yet they offer far more than just pain-relieving medication. The project staff also provide spiritual support, offering those affected new hope, compassion, dignity and the reassurance that they are not alone on their final journey.

But the work doesn't end with the death of the patients. Even beyond death, PCST supports family members to get back to their everyday lives. They often say: "I couldn't have done it on my own." This has also made it possible to help children who had been left behind to find a foster home or a new home, thereby giving them a new lease of life during what would otherwise have been a bleak period in their lives.

"We carry on because every day we see people's faces light up."

Precious Kamange

Director Palliative Care Support Trust, Malawi

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